They have taken on this huge challenge to raise awareness & also money for the charity "KLS Support UK". This is a small charity offering help & support to those affected by Kleine - Levin Syndrome.

KLS is a rare disorder characterised by recurrent bouts of excessive sleep, associated with a reduced understanding of the world & altered behaviour. KLS usually starts in the teenage years but can occur in younger children & even adults. Each episode lasts for days, weeks or even months, during which time all normal daily activities stop. Individuals are not able to care for themselves, or attend school or work.

People with KLS coming out of an episode will have little or no memory of what happened during an episode. Between episodes they have normal sleep, understanding & behaviour. KLS episodes may continue for 10 years or more. KLS is sometimes referred to in the media as " Sleeping Beauty" Syndrome.

If anyone would like to donate to Danielle & Jeni's amazing fundraiser for KLS Support UK they have a JustGiving page at